Mission
RARE Project exists to raise rare disease awareness, unify, equip, and empower a vibrant global rare disease community and fund innovations to support 'in-their-lifetime' rare disease research.

Leadership
RARE's leadership is committed to ensuring that its programs support its mission, are reluevant and impactful. more »

Contact Us
World Headquarters
24701 La Plaza, #201
Dana Point, CA 92629
PH: 949-248-7273 | info@rareproject.org

The Children’s Rare Disease Network is an online community that connects those impacted by rare disease, helping facilitate collaboration and knowledge sharing so that people can find the resources and care that they need most quickly. Visit Our Website »

PATIENTSLIKEME
PatientsLikeMe® is the world's leading online health data sharing platform. PatientsLikeMe® creates new knowledge by charting the real-world course of disease through the shared experiences of patients. more »

The Global Genes Project™ exists to unify, support, build awareness and raise much needed funds for those affected by rare disease. The Global Genes Project™ campaign will broadly promote the needs of this community as a whole, engaging the general public, garnering corporate support under the unifying symbol of hope ~ the blue denim ribbon.
Click here to learn more »

The Rare Fund is a micro-donation website that supports innovations in rare disease research that impact children within their lifetime.

Donate or promote your research now click here » for details